Soon after, I started volunteering at my old primary school a little girl started at the school. She too has Cerebral Palsy and she came into the nursery which I was working in at the time. Once she started she was fitted for an electric wheelchair because prior to this she was pushed around in a buggy. Wheelchair Services with their excellent timing arrived half way through the end of year teddy bear's picnic which understandably was much more exciting to a four year old than trying out a wheelchair but I helped to coax her into it. As soon as she got into the chair, she started smiling as for the first time ever she had been enabled to move independently and make decisions about where she wanted to go. I was very pleased that on some level I helped ease this experience for her and for the rest of the morning we had wheelchair races as she learnt how to navigate her chair and feel in charge of her mobility level.
I'm so proud that I was there regularly as she moved through the school from nursery to year two and that to her I was a 'teacher' who sat down. It was very surreal to watch her live her childhood with a disability and how mature, perceptive and determined she was as a result. These are all qualities that my mum said I had when I was young and I watched them being played out in front of me.I saw how I could be a role model for her in a very 'unbobish' way. I always let her lead conversations about disability as I felt that there was no need to make her face it constantly. I much preferred asking her how her day was and what she had learnt in science and get to know her as a child first. I didn't want to make her perceive disability in the way that I do because she has the right to her own opinions about it (though I was stunned when she told me she really enjoyed physio).
I specifically remember when she was in year two and she whizzed up to me to tell me that she had new footplates all excitedly. It made me feel quite emotional that she had told me that because she knew I could relate to it. I often think of her now as a year five child and am saddened by all of the battles and negativity I know she is likely to encounter but I hope that as she has my level of determination and strong will that she will win through and not have to reevaluate her views of physio!
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